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Updated July 23, 2014

Letter to the editor: Kern

Letter to the editor:

Our son Caleb Kern was diagnosed with intractable uncontrolled epilepsy when he was nine months old in March of 1991. He is now 24 years old. Since then he has had several types of seizures and has been tried on multiple seizure medications to try and control them. We do not know the cause of his seizures. He can’t have any of the surgeries either. He seizes from multiple spots in the brain. He had a pilocystic astrocytoma tumor in his left temporal lobe, so he has endured a brain tumor resection in March of 2009, totally separate of his epilepsy. He has lost three years of his cognitive memory and struggles with many learning difficulties, school and work have difficult for him.

Caleb has been in the hospital several times for EEG’s and also to see if surgery could be done to help. He wasn’t a good candidate for surgery. He seizes from two sides of his brain. So it was suggested to start the Ketogenic Diet to control his seizures. It is a high fat, low- carbohydrate diet. He was on it for two years, he didn’t seize as often, however it didn’t control them. He then went off for nine months and tried Adkins diet but was put back on the Ketogenic diet a year ago, March 2013. No full control yet.

Socially Caleb finds this diet difficult, especially at holiday times, pot lucks, and parties. However he is thankful for some help through a diet.

Caleb is a team captain, for his Stroll for Epilepsy, Caleb’s Courageous Course, August 7, 2014 at RCTC Fieldhouse in Rochester to benefit people affected by seizures. All donations that Caleb ...READ THE COMPLETE STORY BY PURCHASING THE DCI TODAY!

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